@aldomanaldo There are actually varying degrees of EDS, but mine is pretty bad. I'm in constant pain, and my joints literally fall out of their sockets a lot. I have to be careful all the time because my skin is fragile and can cut or bruise easily. I also have delicate blood vessels that cause random nose bleeds, etc. I try to be as normal as possible. There is no cure or treatment, and I can only treat the symptoms. I do my best to suck it up, but it's a progressive disease.
I'm sorry to hear about your being in pain all the time. It sounds like a pretty awful thing to live with. I guess maintaining a positive outlook is part of the battle so I hope you continue to feel better emotionally. Have a great weekend. - David
Understandable. I live in Indiana and have to travel out to get to a site photographer. It's a shame though I'm surprised they don't find time for you.