This year, what I want more than anything for X-mas is to set up another shoot for this site in the not too distant future...

And, of course, to have one bought. I really want/need to shoot a cosplay set. I mean, what’s more awesome than a handmade latex Gwenpool? Right?

Please SuicideGirls!? @missy @rambo?


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VIEW 12 of 12 COMMENTS
chrstphrgould:
Yes, please.
colorado_john:
Here's hoping you get your wish!
VIEW 4 of 4 COMMENTS
sid:
@littlejohn22 I wish I knew.  My Doctor thinks I might need surgery to scrape out all the gross from my sinuses, and possibly a nose job if I have a deviated septum.  I wouldn't mind having the bump in my nose fixed and maybe making the tip smaller (only if insurance covers what and if something is wrong with my nasal passages because it's pretty much part of the procedure).  Or I need surgery on my actual sinus cavities and possibly on my skull (a cousin of mine had to get that done, they had to reconstruct what the infections had "ate" at his skeleton). Luckily said cousin isn't a blood relative.  He's one of my parents' best friends' sons.  Anyway, it's not something I can afford to do, seeing a specialist I mean, at the moment.  We are pretty much in a financial hell due to some setbacks and a person who sexually harassed and assaulted me (and other women) pretty much making it impossible for each of us to get cosplay work here in CO anymore.  I also can't afford the $1200 deductible on the MRIs I need to check my sinuses and see if I possibly have MS.  This country's health system just isn't fair to chronically ill people.  In fact, it just makes those of us who need more medical intervention (in any form) pretty much go bankrupt.  Our entire year has been just fighting to keep me from being in extreme pain.  I know my EDS is going to just get more and more painful, and I know when it's too much, even with meds, I want to go on my own terms instead of suffer like my dad and grandfather did.
jeremy7135:
Ouch!
VIEW 11 of 11 COMMENTS
starry:
I feel like such a creep commenting on all your posts here and on IG, but I really feel for you. Also Jack's Mannequin is awesome- I love "The Resolution". Anyway, I just feel like we're incredibly similar in some ways. You've been through so many more things than most people could imagine and so the way you feel is actually really normal and understandable. I also often feel like this, and it's honestly like my own personal little hell. Being chronically ill is awful, because it seems to take away everything and leave you isolated and unable to see the future. At least that's how I feel constantly, especially being bedridden for the past year. I know it's hard with a chronic illness, but I truly find that what helps me the most is taking a trip somewhere or seeing friends and dressing up and taking photos. If I can't leave my bed, I obsessively watch horror movies and anime. If my body will not leave me alone and is in pain, lately I've been taking warm baths and putting in peppermint/green tea/chamomile tea bags. If I have weed of some sort of THC & CBD capsules or oil, I take that and try to force myself to do something. Then I try my best to go back to distracting my brain. Or something else that's been really great is joining a support group- I do not know yet if I have chronic fatigue syndrome/myalgic encephalomyelitis, but my doctor wants to diagnose me with it after a year of being bedridden with various symptoms- so I attended a CFS/ME meeting here in my town and it just made me feel SO validated and less isolated. Or you can join Facebook support groups, which are awesome, because people there get it. I think ultimately, one of the best things to do is to reach out to other chronically ill people/spoonies- because we know how hellish living is when you're trapped and have tried everything and you're just still in so much pain. I really hope that helps you, and I truly hope I did ramble too much. You seem like such a crazy strong person, and I genuinely am grateful that I am not the only chronically ill/rare disease gal on this site. That being said, I am truly sad that your body makes you suffer so much too. I really hope that you can find some solutions and that you don't give up. Sometimes the only thing that keeps me going is just reminding myself that one day I want to be here for people like me and to help them. I want to be the person I needed for them. I'm sending you so, so much love. You truly are not alone, and I hope you find relief. <3 xoxo
starry:
Also my awesome babe @stormyent also has EDS, so maybe she can help more than me, as my illness is autoimmune/inflammatory. <3