I’ve been stuck in and out of doctors’ offices, urgent care appointments, and yesterday, I was in the hospital.
I’ve been having some real bad stomach issues. After having my Gastroenterology appointment canceled for the 3rd time this year and moved to a ridiculously longer time (first appt made in January, for April, pushed back to July, which was pushed back to November, which was pushed back to February of next year), when the symptoms got really bad, I called my doctor and went to virtual urgent care, and was told to go to the hospital yesterday.
If I had gotten to one of those GI appointments, I wouldn’t be suffering. I would have found out I have lesions on my GI tract and organs, my liver is misshapen due to my EDS, but it seems to be otherwise fine. I don’t drink or anything very much anymore anyhow…
Though I still have more steps to a diagnosis, the lesions and digestion issues are enough to activate the possibility of one of my biggest fears, which some people don’t see as a big deal, but having to get a feeding tube scares me so much. I’ve worked so hard hiding my disability my whole life, having something so obvious out there is hard. Yes, I’ve needed mobility aides in the past and such, but there’s something about not being able to eat amazing food as much and just having even a nasal feeding tube just kind of freaks me out. You know?
Anyway. I am slowly settling into the new house. It’s hard unpacking when you can’t move very much without literally getting sick.
There’s still a few things I need for my house. If you’d like to send me a little something for housewarming, here is a wishlist. I will be getting a PO Box shortly. Just life keeps getting in the way…
Most of all, I just need happy and good vibes in my life right now. I’d really appreciate those as I heal.
x0x0,
☠️-Sid-☠️
