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hexxus

Bend, Oregon

Hopeful Since 2009

Followers 5298 Following 305

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Sunday Jul 10, 2011

Jul 10, 2011
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this woman has been kind to me every time we have talked. it pains me to hear of this.
if anyone can spare anything please help her.
Committed

ive done what i could..

Committed said:
I am not sure if posting something like this is allowed, but I am desperate and figured I would post. So long story short, I have Complex Regional Pain Syndrome, a chronic and very painful disease of the nerve involving central and peripheral nervous systems. For over 23 years, I have been living with severe dibilitating pain, in and out of wheelchairs and crutches, in and out of hospitals, etc. Undergoing many procedures & surgeries on top of being on nearly 400 different kinds of medications to battle my symptoms, not much has helped except for the implantation of a spinal column stimulator. Unfortunately my recent and 5th surgery to repair the implant failed, so it's back to the drawing board. Since the surgery I had didn't work, my only two options are to take part in research that unfortunately doesn't come free because of the lack of funding or I could be on over 10 different medications for the rest of my life. I would rather not take the latter option for financial reasons and the fact that it's not a way to live productively. I am desperately asking for help with donations and also to spread the word that I am raising money to help fund getting me into the research for a possible cure going on down in Florida/Mexico and at Stanford University. So far, the percentage of full recovery for people with CRPS/RSD after these trials has been about 75%. This is the highest recovery/cure rate for any procedure that has ever been performed. There are only 3 more available spots open, and I have until August 7th to raise $7500. This will cover my enrollment fees only. All of my resources have been depleted with having to pay out of pocket for medications that reach over $100 each. Not to mention paying out of pocket be seen by specialists around the West Coast and that hasn't come without a great deal of financial stress. There are so many of us that are going through financial turmoil and it has taking me till now to come to terms with asking for help, but I am desperate. Please feel free to post questions, ideas, concerns, anything. Also, a Facebook link to the fundraiser group and to donate is up, so please feel free to join the group on FB and repost as much as you can. Much love to you all, and I hope you all are well and enjoying summer. Thank you all for taking the time to read this!

Facebook Group Page For The Fundraiser
Donations
If you have any issues with these pages or if it for some reason won't let you view/join, shoot me an email at ohleemohlee@gmail.com
Pay Pal Donation Page
Recent Pictures:
My leg.


After spinal surgery.




VIEW 3 of 3 COMMENTS
hypnokitten:
She sounds like a good and sweet person, I can try and skip a few coffees to help out, we all need a helping hand sometime. I am going through a move but if she still needs it after October post on here and I'll try to send a bit more.
Jul 10, 2011
friscillating:
Ahoy!
Jul 12, 2011

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