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aksiokersa

Member Since 2004

Followers 52 Following 81

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Thursday May 26, 2005

May 26, 2005
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(if you already read the intro about IC, check out today's thoughts underneath the row of pretty pretty stars)

I thought it would be cool to document teh life of a chick who's got the girlie-disease "interstitial cystitis."
A lotta people don't know what I.C. is so here goes: incurable tiny ulcers inside the wall of your bladder make it hard to walk, exercise, eat, drink, fuck, dance, breathe, smell flowers, blah blah blah.

The thing is? I have this disease and i'm still kickin' ass.
And other for-real chicks that have bullshit going on with their bodies can relate.

No matter what our mutherfucking misogynistic doctors, sadistic nurses, well-meaning family members, and uninformed aquaintances say, we are awesome, and we can do a good job of taking care of ourselves, thankyouverymuch.
****************************************************************************************************************************

When you're sick, everyone tries to tell you what to do. Everyone thinks that they know what will help you. Some people even seem to like jumping in and criticizing you for any little mistakes you might make regarding your health.

So when I go home to visit my hometown friends and my family (like I did for the past week), I'm always really stressed out. I have to brace myself. It's gotten to the point where I almost don't want to see those people anymore.

They haven't seen how hard I've worked over the past year to change my life for the better and that is frustrating. However, in some respects I don't really want to tell them how far I've come. That would involve my having to tell them that I almost had to be hospitalized cause I got so depressed at one point. And how would they respond to that?

They might criticize me even more for being weak or having been "beaten" by my disease for a while.

I don't know...it's all so complicated... puke

I just wish more people would understand that we all do better when the people around us are supportive and understanding rather than critical and judgemental.

Sorry for the misspellings and typos - I got probs with my wireless connection and that makes using dictionary.com a bit difficult.
VIEW 10 of 10 COMMENTS
taoshen:
Woohoo! I'm page #23 ... I'm sure it hold some special place in your heart. wink

I am definitely leaning towards the back ... I do believe I am 1/8th Cherokee .... that is according to my grandmother.

And you are aware, my dear, that you are one of my friends. wink

[Edited on May 27, 2005 6:41PM]
May 27, 2005
damonone:
your puppy is awesome! biggrin
May 27, 2005

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