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it's my journal!!! (if you already read the intro about interstitial cystitis, check out today's thoughts underneath the row of pretty pretty stars)
i thought it would be cool to document teh life of a chick who's got the girlie-disease "interstitial cystitis."
a lotta people don't know what I.C. is so here goes: incurable tiny ulcers inside the wall of your bladder make it hard...
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VIEW 16 of 16 COMMENTS
acarr:
That was all for you baby!!
_el_zilcho_:
Anything involving Pee Wee Herman is aces in my book.
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WEDNESDAY FEBRUARY 16 2005 12:07 AM

it's my journal!!! (if you already read the intro about interstitial cystitis, check out today's thoughts underneath the row of pretty pretty stars)
i thought it would be cool to document teh life of a chick who's got the girlie-disease "interstitial cystitis."
a lotta people don't know what I.C. is so here goes: incurable tiny ulcers inside the wall...
Read More
VIEW 10 of 10 COMMENTS
strongmad:
That was sooooo me in your dream!

And I think we can all agree that hot nipples are worth a risk. wink

Seriously, I'll be wishing the best for you.
kirin_ka:
You can't die, because that would suck. I hope you are going to be okay. biggrin biggrin
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it's my journal!!! (if you already read the intro about interstitial cystitis, check out today's thoughts underneath the row of pretty pretty stars)
i thought it would be cool to document teh life of a chick who's got the girlie-disease "interstitial cystitis."
a lotta people don't know what I.C. is so here goes: incurable tiny ulcers inside the wall of your bladder make it hard...
Read More
VIEW 18 of 18 COMMENTS
zombieelvis:
Very wise. I'm taking my Good Lady Wife and the nippers to London tomorrow for the weekend to see the dinosaurs in the museum and eat Mexican food. Interestingly, the Natural History Museum (where we're going) has a volcano section, with mock-ups of volcanic activity. I'll survey the ash scattered in an orderly fashion around the displays and think of the dark secret you're keeping from your mother's innocent eyes.

Oh the shame.

My guilty secret: a couple of weeks ago my eldest daughter made biscuits at school (cookies?). I ate three quarters of them - they were so nice - she was upset that most of them had gone so I blamed it on the pet geese. My daughter then asked if I'd bought pet geese while she was at school (we don't actually have pet geese). I said I did, but they died after eating her biscuits. The therapy is on-going.
suzy_kabloozy:
No, sweetie, I really mean it. I might have elaborated more, but I am fortunate to never have had many health problems so I wasn't really sure what to say. I do have another friend though ... she has HIV, Hep-C, an allergy to gluton (which is apparently in EVERYTHING) and diabetes. Many days just suck for her! Now granted in her case, some of these ailments are a direct result of bad mistakes she made in her past. But it doesn't matter why ... this is just the reality now. Even with all this, she went back to school a few years ago ... clearly expecting to fail. I laughed at her. She's smart and able. I knew she would do fine, it was just a community college. And she did. But she blew us all away ... she was Valedictorian when she graduated! Now she is at the university finishing up her degree and plans to go for a Masters as well. To say I don't know how she does it is an understatement. She has pain and fatigue like most people will never experience, but she just keeps putting one foot in front of the other, day after day. What else are you going to do? Lay down and die?

But of course we all have challenges and adversities that we must overcome. I have my share of problems, too, but sometimes I am humbled greatly by running across someone like you. I am inspired to try harder and be a better person and make the world a better place by realizing that I want to be part of the solution and not part of the problem. Because, my dear, that is what I see you doing.

And that is why I said it. And I'll it again: You are awesome!

~Suzy kiss

P.S. Having said all of that ... I am SURE I am a bigger geek than you. Ha! Your posts in the Uber Geeks crack me up.
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I wrote this to my peeps over in the chronic pain/illness group and it is pretty much what I want to say to EVERYONE IN THE WORLD RIGHT NOW:

"Wel"' people almost always feel perfectly comfortable telling us sickos *all* about the minutiae of their day at work. What we need to do is show them that we are just like them, it's just that...
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VIEW 14 of 14 COMMENTS
kirin_ka:
Look at my pic, it is still Napoleon Dynamite. It's incredible.
kirin_ka:
Ot-oh.....you changed your avatar......that might make some girls upset. wink
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they need to make valentine's cards with guns.
I can't find any.
VIEW 8 of 8 COMMENTS
aksiokersa:
Prolly not.
I'm not a hugger.
I'm more of a chuck-on-the-shoulder type-a-gal. biggrin





gilby:
You're just making excuses, because I'm not cute... smile
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Happy Fuckin' Valentine's Fuckin' Day.

This is a really stupid day that sucks for a lot of reasons, the first one being that I can't get the image that I want uploarded correctly.

The second is that even though it's all manufactured and shit, I still love it. It is awesome to send valentine's and to get them. And that makes me embarrassed.

I say...
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aksiokersa:
"UploaRded"?!!!
I'm talkin' like Coarch Z!!!!
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it's my journal!!! (if you already read the intro about interstitial cystitis, check out today's thoughts underneath the row of pretty pretty stars)
i thought it would be cool to document teh life of a chick who's got the girlie-disease "interstitial cystitis."
a lotta people don't know what I.C. is so here goes: incurable tiny ulcers inside the wall of your bladder make it hard...
Read More
VIEW 9 of 9 COMMENTS
strongmad:


Happy valentine's day!
bigwhelturnsmal:
Happy Valentine's Day

A rose for You M'Lady

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it's my journal!!! (if you already read the intro about interstitial cystitis, check out today's thoughts underneath the row of pretty pretty stars)
i thought it would be cool to document teh life of a chick who's got the girlie-disease "interstitial cystitis."
a lotta people don't know what I.C. is so here goes: incurable tiny ulcers inside the wall of your bladder make it hard...
Read More
VIEW 14 of 14 COMMENTS
gilby:
The only withdrawal I ever had was from a person. I was dating a girl, didn't see her for almost a month. She was on vacation and just having some time to herself. The weekend she came home, I IMed her. I missed her very badly, so I was going to ask her to go away with me the next day. I thought we could go to Gameworks and out to eat. but before I could ask her, she dumped me.
bigwhelturnsmal:
So about your pain meds is it possible to switch doctors. Or at least threaten to? The thing I have learned is these doctors are providing a service and they do not want to lose your business. Just say hey look I will take myself and my medical history somewhere else. They never believed I was in pain till weeks later and the swelling had not gone down ( and I threatened to leave). Now they give me everything I ask for. But anyway. My situation is not really as dramatic as I guess I make it sound. Like I have always said it could be A LOT worse. The bitch of it is no one really knows what starts it or what stops it. It is a, " Well let's see what this does" kinda thing. Which I assume is the same thing you are going through. The bone damage is not as bad either. It doesn't show up on the regular X-ray just on the actual bone scan. So this is a good thing. And is it just me or did the new ASH set just fucking melt all that was holy around you? Gotta go......... wink smile
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it's my journal!!! (if you already read the intro about interstitial cystitis, check out today's thoughts underneath the row of pretty pretty stars)
i thought it would be cool to document teh life of a chick who's got the girlie-disease "interstitial cystitis."
a lotta people don't know what I.C. is so here goes: incurable tiny ulcers inside the wall of your bladder make it hard...
Read More
VIEW 14 of 14 COMMENTS
alpo:
We might have more in common than you think. I'm a tree-hugger, organic-farm supporter, and nike-boycotter too. Not a vegetarian but I do try to eat free-range meat. smile

Libertarianism to me is mostly about trusting individuals and local communities to solve their own problems better than others can. I'm opposed to big government but also big business. In my most idealistic moods I think what's wrong with the world is not that the wrong people are in charge but that anyone's in charge---the tendency to form centralized, hierarchical systems of control is a disease against which the human race should be vaccinated. The desire to hold political office should instantly disqualify you from it.

[Edited on Feb 10, 2005 2:45AM]
alpo:
How could anyone not get Shonen Knife? I can't wait for that show. The last time I saw them was in 1999, I think.

Where in California do you live? I have family in the Bay Area and go down there a couple of times a year.

The "49 degrees" picture goes with this journal entry.
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it's my journal!!! (if you already read the intro about interstitial cystitis, check out today's thoughts underneath the row of pretty pretty stars)
i thought it would be cool to document teh life of a chick who's got the girlie-disease "interstitial cystitis."
a lotta people don't know what I.C. is so here goes: incurable tiny ulcers inside the wall of your bladder make it hard...
Read More
VIEW 6 of 6 COMMENTS
perversia:
Thanks for the very nice comments! blush

Rammstein rocked and did help take my mind off the shit going on in my life.

I'm sorry to hear about your thesis proposal. Good luck with the next one!

kiss

PS You should like an amazingly strong person. Thanks for sharing the information coz it's something I hadn't heard of.
zombieelvis:
What?


What?


Was it something I said?


Huh?
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it's my journal!!! (if you already read the intro about interstitial cystitis, check out today's thoughts underneath the row of pretty pretty stars)
i thought it would be cool to document teh life of a chick who's got the girlie-disease "interstitial cystitis."
a lotta people don't know what I.C. is so here goes: incurable tiny ulcers inside the wall of your bladder make it hard...
Read More
VIEW 7 of 7 COMMENTS
strongmad:
Know what's weird? I have a masters and don't even remember the title, cuz it was almost as fucked up as yours! It was in Industrial Psychology and was about the effect on cognitive and motor processes of viewing positive and negative stimuli (in the form of news broadcasts).

King's short stories are his best work. If you haven't read "Everything's Eventual," get it immediately. One of the stories won the O. Henry Award, which is a big deal.

As for "The Raft," everyone knows that in horror stories, sex leads to death.

Hope you get down to a 4 or 5 tomorrow. kiss
Our diseases are actually pretty similar, except in my case the ulceration is in the small intestine.
zombieelvis:
We were created in the same lab experiment. I got both the brains and the good looks. He got the bits they put in those yellow hazzard bags.

Yummy!

I hate Bush too. I hate Blair. But I just can't get enough of those Dorritos! Thank you America!
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it's my journal!!!
i thought it would be cool to document teh life of a chick who's got the girlie-disease "interstitial cystitis."
a lotta people don't know what I.C. is so here goes: incurable tiny ulcers inside the wall of your bladder make it hard to walk, exercise, eat, drink, fuck, dance, breathe, smell flowers, blah blah blah.
the thing is? i have this disease...
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VIEW 15 of 15 COMMENTS
eponine:
vanilla mint toothpaste is definitely rad.
IC doesn't sound as rad. :/ a lot of doctors are really fucking retarded, despite the extensive schooling.
shicawgo:
I know what you're talkin about. I've got an incurable autoimmune thing. And yes, I too am kicking ass. Rock on sister. kiss