Hello SG world. I've gotten a few emails about my medical condition so I thought I would write a blog to spread some awareness. In July of 2012 I was diagnosed with Lupus (SLE). This is from lupus.org Lupus is an autoimmune disease. In some ways, lupus represents a kind of allergic reaction by the body, in which the immune system sees the bodys own healthy tissues and cells as foreign.
Lupus is a chronic disease. This means that anyone who develops lupus will have lupus for the rest of his or her life. As with other chronic illnesses such as diabetes or asthma, there is no cure for lupus yet. However, there are medications and lifestyle adjustments that help most people live active and productive lives in spite of these illnesses.
Lupus has many different symptoms, and because of that, affects each person differently. Lupus can cause a mild skin rash or achy joints, or can involve the kidneys, heart, lungs, brain, or other internal organs. What most people do not realize, however, is how much effort it may take you to function day-to-day when you have to cope with extreme fatigue, chronic pain, memory loss, medication side effects, and/or visible skin lesions.
Lupus is unpredictable because it is a disease of flares (the symptoms worsen and you feel ill) and remissions (the symptoms improve and you feel better). Knowing that lupus is unpredictable may help other people understand your physical and emotional ups and downs as well as the changes that you may have to make to schedules, plans, and commitments.
I'm currently working with a few specialist that will hopefully help me go into remission. But for now I'm going to remain tough and keep doing the best I can. I appreciate all the love and support people have shown me. It has not been easy being so young and being diagnosed with a life changing condition. But I look at it as there is no point in being sad about it, it's not going to make it go away. Plus there are many people out there way worse off then me. I hope that this has helped shed some light on lupus. Have a good week. Much Love
Lupus is a chronic disease. This means that anyone who develops lupus will have lupus for the rest of his or her life. As with other chronic illnesses such as diabetes or asthma, there is no cure for lupus yet. However, there are medications and lifestyle adjustments that help most people live active and productive lives in spite of these illnesses.
Lupus has many different symptoms, and because of that, affects each person differently. Lupus can cause a mild skin rash or achy joints, or can involve the kidneys, heart, lungs, brain, or other internal organs. What most people do not realize, however, is how much effort it may take you to function day-to-day when you have to cope with extreme fatigue, chronic pain, memory loss, medication side effects, and/or visible skin lesions.
Lupus is unpredictable because it is a disease of flares (the symptoms worsen and you feel ill) and remissions (the symptoms improve and you feel better). Knowing that lupus is unpredictable may help other people understand your physical and emotional ups and downs as well as the changes that you may have to make to schedules, plans, and commitments.
I'm currently working with a few specialist that will hopefully help me go into remission. But for now I'm going to remain tough and keep doing the best I can. I appreciate all the love and support people have shown me. It has not been easy being so young and being diagnosed with a life changing condition. But I look at it as there is no point in being sad about it, it's not going to make it go away. Plus there are many people out there way worse off then me. I hope that this has helped shed some light on lupus. Have a good week. Much Love
animal_mother84:
I got your back!