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roxxee

Germany

Member Since 2003

Followers 359 Following 44

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Friday Jul 28, 2006

Jul 27, 2006
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Here we go again! Man is my life hectic. Well I'm back. Again. For awhile.

So I recently found out my son, my little Doodle, is Autistic. I'll tell ya, I didn't know how to take this. We've been pretty sure that this was the case for quite some time so I certainly wasn't broadsided. Docs told us to go ahead as if this were the case, but what the hell did that mean anyway? I must admit it's a huge relief to know the truth and be able to proceed. Problem is I really don't know how to "proceed". I mean speech therapy and socialization yes, but...what else? Is there a what else? I've been all over the net looking at info on Autism and reading what Autistic adults have to say and I've come to an awesome realization. My kiddo doesn't have an affliction, there's just something different about him than about myself. I read these incredible articles by this man called Jim Sinclair, who is an Autistic adult and one thing he says in an letter to parents entitled "Don't Mourn Us" struck me to the core:
"Autism is not an appendage Autism isn't something a person has, or a "shell" that a person is trapped inside. There's no normal child hidden behind the autism. Autism is a way of being. It is pervasive; it colors every experience, every sensation, perception, thought, emotion, and encounter, every aspect of existence. It is not possible to separate the autism from the person--and if it were possible, the person you'd have left would not be the same person you started with. This is important, so take a moment to consider it: Autism is a way of being. It is not possible to separate the person from the autism. Therefore, when parents say, "I wish my child did not have Autism, what they're really saying is, "I wish the autistic child I have did not exist, and I had a different (non-autistic) child instead. Read that again. This is what we hear when you mourn over our existence. This is what we hear when you pray for a cure. This is what we know, when you tell us of your fondest hopes and dreams for us: that your greatest wish is that one day we will cease to be, and strangers you can love will move in behind our faces."

So there's that. He's a bad ass, Hulk-loving little billy and I love him. If you're interested in the subject at all here are a few good links for ya. Getting the Truth Out and Jim Sinclair.

And now for something totaly different. The lyrics to the totaly awesome X-Ray Spex song "Oh Bondage! Up Yours!"
Bind me tie me
Chain me to the wall I wanna be a slave
To you all

Oh bondage up yours
Oh bondage no more
Oh bondage up yours
Oh bondage no more

Chain-store chain-smoke
I consume you all
Chain-gang chain-mail
I don't think at all

Oh bondage up yours
Oh bondage no more
Oh bondage up yours
Oh bondage no more

Thrash me crash me
Beat me till I fall
I wanna be a victim
For you all

Oh bondage up yours
Oh bondage no more
Oh bondage up yours
Oh bondage no more

And now for questions:
Do you or did you ever like the group Roxxette?
Yes and yes.
What is/was your favorite song by them?
Oh man, "Dressed for success all the way.

Out.
Roxx
VIEW 6 of 6 COMMENTS
letigre:
It is nice to see you moving forward with a positive outlook on this. Your son is lucky to have a loving and supportive mother. It's a shame to think that some parents actually think those negative thoughts about their children, just because they are a little different. I wish you and your son only the best.

♥
Jul 28, 2006
josearcadio:
I am glad that you have assumed your child's condition in a positive way.Your positive perspective will benefit both, Tons of love to you smile
Jul 28, 2006

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