I need to make more of an effort to post, and be active on here. I tend to spend all my time on twitter, or other places, and neglect to post on SG. Lately I've been feeling more and more that the big social platforms are awful, and that I would rather leave and be part of a better community if only one existed. All the while my SG page is sitting here unused.
So what's new? Well, after a lot of visits to a lot of doctors (Pain clinic, dietitian, podiatrist, rhumatologist, spinal specialist...) and after multiple blood tests, MRI, physio etc, I finally have a diagnosis - Fybromyalgia. There's part of me that feels they've diagnosed me with that because they don't know what else to call it, but having read up about it, it does fit with a lot of my symptoms. Either way, it feels good to actually have a name that I can give to it now. I feel validated.
I have been advised to try joining an online fybromyalgia support group, but it seems like that mostly involves Facebook groups, and I hate that place. Maybe Reddit is another option but I'm not sure about that site either. I guess that brings me back to my point that all the major social platforms are awful. But what can you do? I need to get out there more, I need to meet people, make friends, be social... I am useless at it in real life, I need online places to be social, and that unfortunately means being on social platforms that I don't like. Except SG obviously, which is great, so I should make more of an effort.
