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phunkybrewster

Member Since 2006

Followers 68 Following 48

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Wednesday May 06, 2009

May 6, 2009
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This weekend we are doing a bowling fundraiser for a girl Ive known since elementary schools., daughter Chloe. She has a serious disease called Neurofibromatosis. (commonly abbreviated NF) is a genetically-inherited disease in which nerve tissue grows tumors (e.g. neurofibromas) that may be harmless or may cause serious damage by compressing nerves and other tissues. The disorder affects all neural crest cells (Schwann cells, melanocytes, endoneurial fibroblasts). Cellular elements from these cell types proliferate excessively throughout the body forming tumors and the melanocytes function abnormally resulting in disordered skin pigmentation.The tumors may cause bumps under the skin, colored spots, skeletal problems, pressure on spinal nerve roots, and other neurological problems.
She has to wear a leg brace and is undergoing major surgery and will be in a bodycast for many months. She just turned 4.

This is her website http://www.chloebelledancel.blogspot.com/ I got my work to donate gift certficates and a personal check from the owner. I think the turnout will be fabulous and they will raise a ton! biggrin

On another note my lovely and cute and ever so giving husband spoiled me with more summer goodies.



He's so great i love him!!!!!!!!!!!!!!!!!
After shopping for me LOL we got my Mom a bracelet and the dvd Curious Case of Benjamin Button, and I got my Nanny a Swiffer and a corkboard for her new kitchen. We are having a big barbeque this weekend.

On yet anotherrrrrrrr note I decided I am going to join ....................


My friend works for them, she lost 140 pounds and has kept it off after 3 kids!!! Heres hoping!!!
biggrin
VIEW 6 of 6 COMMENTS
cassy:
my mom's going back to JC, she loved it before.
i love that stuff your man bought, gorgeous stuff...when do we get to see some pics?
i miss my love, and i'm feeling meh about it...i need to get to ohio already....
May 10, 2009
spacelola:
I am pretty sure that your awesome vibes made it my way today... Thanks smilesmilesmile
May 11, 2009

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