"Some people spend their whole life looking for angels, I've held one in my arms."
Tay, he is an angel. I remember seeing him right after he was born, strong arms flying everywhere, lots of dark hair and long long legs. I was so happy. I smiled so much my cheecks hurt. He never missed the oppurtunity to flirt; always smiling at the girls, showing them his new toys and new things he had learned (and he was so adorable, but even more smart).
Less than two years later he couldn't stand, sit or move by his own strength. He had Leukodystrophy. He died at 21 months old. I can't stop thinking about him (and heaven forbid I ever do). I can see him everytime I close my eyes. He had the most beautiful hair, he really was an angel. I can't even put into words all he's given me. The only boy who's ever broken my heart, but I wouldn't change any of it. That was my Tay, that will always be my Tay and even if I miss him more than I would miss my own life I know he's there, where's he's ment to be.
I guess where I'm going with this is to say that babies aren't screened for these kind of degenaritive diseases at birth (I'm not pointing any fingers, I just think people should know. They could have saved Tay if we'd known sooner. I just think its worth it, knowing that your baby is okay and how to best take care of them if they aren't.).
So, okay. Everyone should check out Hunter's Hope.
Tay, he is an angel. I remember seeing him right after he was born, strong arms flying everywhere, lots of dark hair and long long legs. I was so happy. I smiled so much my cheecks hurt. He never missed the oppurtunity to flirt; always smiling at the girls, showing them his new toys and new things he had learned (and he was so adorable, but even more smart).
Less than two years later he couldn't stand, sit or move by his own strength. He had Leukodystrophy. He died at 21 months old. I can't stop thinking about him (and heaven forbid I ever do). I can see him everytime I close my eyes. He had the most beautiful hair, he really was an angel. I can't even put into words all he's given me. The only boy who's ever broken my heart, but I wouldn't change any of it. That was my Tay, that will always be my Tay and even if I miss him more than I would miss my own life I know he's there, where's he's ment to be.
I guess where I'm going with this is to say that babies aren't screened for these kind of degenaritive diseases at birth (I'm not pointing any fingers, I just think people should know. They could have saved Tay if we'd known sooner. I just think its worth it, knowing that your baby is okay and how to best take care of them if they aren't.).
So, okay. Everyone should check out Hunter's Hope.