ossaman

No worries love. I will definitely get you some links that I can find for it. My neurosurgeon friend is the one that called me to tell me I need to be on the medication. I just sent an email off to a geneticist in New Zealand that is my "unofficial" case worker to find out what she knows as well.

What I do know is it has been used sucessfully in France, South America, and I know they have it in the U.S., but it is terribly expensive. 230.00 for a 20 day supply. Ouch. It works much differently than the other drugs, because it keeps the brain cells from dying. Because though it is prescribed for Alzheimers and not HD, most insurances will not approve it.

Anyway, I will try and get you some information about it, and as soon as I hear from the scientist in NZ I will let you know her thoughts on the drug as well, if they have it there.

Take care!

~cheers

www.namenda.com is the offical site link.

The surgeon also indicated she was going to get in touch with the doctor that was speaking to this particular conference about the drug, as they apparently are starting to look at doing clinical trials of it for the HD. I'm willing to try it. I'm already on minocycline for it.

~cheers