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kaikai

New Hampshire, Cape Cod, New York City and now London.

Member Since 2006

Followers 389 Following 273

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Monday Mar 04, 2013

Mar 4, 2013
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Having ended way to many blogs on a negative note lately, this one is going to start with the bad, get it out of my system, and then hopefully end on a positive note!

The bad - So after a surprisingly few number of doctors visits and my very first but far from last visit to a rheumatologist I was diagnosised with Sjogren's Syndrome A disease when told I was testing positive for seemed silly is actually not at all. What it does mean is that I have yet another autoimmune disease like I was concerned about. My body seems to do a lot more attacking me then it does healing me...

I've put the rest about this in a spoiler as it's quite a depressing rant, so if you can't deal with a lot of negativity or prefer to know me on more of an aquiantence level then please skip over this to the good!

SPOILERS! (Click to view)
Sjogren's like my two other autoimmune diseases (Hashimotos Thryoiditis and Psoriasis/Psoriatic Arthritis) is a disease that seems so simply and is almost impossible to explain to other people who have not experienced it. Sjogren's is know by it's two most common symptoms, dry mouth and dry eyes. But just like psoriasis it means a lot more then just a little dryness. Basically Sjogren's is a disease that causes your white blood cells to attack your moisture producing glands, the two obvious(mouth and eyes) but also can affect organs and joints as your whole body uses water. It often effects people in different ways, and to be honest until I was shown where my saliva glands were I had no idea that my mouth was any drier then anyone elses! (the glands are swollen and what I always thought was jaw pain is actually pain from my saliva glands.) I'm currently on new meds, and will get even more in a month or so,this means many changes in kais body hopefully for the better, but with new meds often comes a very tired and moody kai getting used to them!



The Good! - I've been settling in quite well. I go to a monthly game night which is so much fun! ( thanks [member]Gigabrain[/member] for introducing me) and I've bonded with some really amazing new friends that way. Can you believe I met people through a social gathering rather then through SG?! unheard of! It's nice that I'm starting to grow my own little group of friends here as things were getting quite lonely! and they are very supportive in my new problems. <3

The future! - Having settled in quite well I've begun looking properly for flats in Boston. My independence is throughly missed! (along with freakishly long commutes driving me mad.) I've already started buying little things and building up a collection of all the cute things for my own flat again! (after having to ditch so much of my home in London) and I'm beyond excited for my own kitchen! (even if I don't have pots and pans yet.)

VIEW 18 of 18 COMMENTS
snowy:
Yes please! Send me your address and you'll receive a letter soon (I don't know how long it takes to send letters to the States..!)
Apr 17, 2013
noldor_:
you're right love, i've waited too long
Apr 25, 2013

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