bigpunkmike

I have made it back from Washington, kind ofI am sitting in the airport in Baltimore writing on my laptop while businessmen stare at me because my laptop is worth more than theirshahaha, corporate bitches. I have both good news and bad news. I do not know what you would like to hear first but Ill go with the good. I am finally back on Enbrel, my most beloved medication. Out of everything I have taken over the past 12 years nothing has worked like enbrel has. I was either the first or one of the first to take this new drug out of the few thousands who have wegners. It was the first and only medication that ever put me into remission and made me feel as though I might actually have a future. I was on it for two years as part of a research protocol, then the 2 year period ended and things were great, so I was taken off of it. Things seemed to be going well, actually that was about the time I met Ashley But it was only a few months before I started to flare again. I was hospitalized a couple of times over the summer break, finally on august 1st my kidneys gave in yet againsoyeahenbrel good, no enbrel and mikey gets sick. So I guess the bad news is why I am going back on it. Over the past month I have seen my bloodwork slowly creeping in the wrong direction. Ive been losing kidney function and my kidneys started to bleed some more. Also my immune system is not doing well, and my ESR keeps risingboooo! My doctors are afraid that if they didnt change something now it would probably only be a few more months before I permanently lose kidney function or they fail. Last thing I need is some transplants, I would like to retain all my own organs. My current drugs are kinda of keeping things stable but not causing improvements. Past experience shows that these types of scenarios lead to sudden serious problems for me, change was needed. I have one month to show improvement, if I dont, its back to harsh chemo and steroid treatment which would kill my spirit Now I get to decide where to do my enbrel injections... stomach or legs? Im thinking legs, its less painful there.

Thats basically been my fun day. Hopefully everyone else day hasnt been too terrible

One of the toughest things I have learned from life is that its very hard to get ahead. Very rarely does life move along without problems. You think youve gotten things sorted and youre doing good, them bam, you get kicked in the nuts. Its a painful, vicious cycle. I know Tushar knows what its likehis recent adventures seem to equate to mine.