my update from yesterday which I couldn't post from the hospital
Well I am back at the NIH. My kidneys are fucked yet again but what can I say, they basically always are. Looks as though I will be starting some new treatment next week which is somewhat experimental. Its some cancer treatment that I will receive by IV once a week for a month. It breaks down the b proteins in my system that are seen in the ANCA. I test positive for ANCA so I am apparently a prime candidate for this treatment. The IV doesnt bother meI can handle large needles being lodged inches into my veinsits the having to stay for 2-3 days each time. As I have said many times before, all I want is a break. I wish I could be normal. I wish I could wake up even for just one morning and spend the day as a normal, healthy human. I wish my problems would go away. They are all too complex. I understand dealing with problems and what life throws at you is all of part of growing up but Ive been dealing with being an adult since I was 12 years oldwhen is my time to experience life.
Tonight I will stay at the park inn, its a local hotel on the Rockville pike. I dont mind it there, last time I had a suite because it was the only rooms they had left, I doubt I will be as lucky this time. Ill probably wander over to White Flint mall at night and hit up dave and busters.
One upside is that if I do end up growing through this new treatment I will almost earn another free flight through southwest, which would mean Id have 2 round-trip tickets for anywhere in the US and either 3 flights to new york or 2 to the west coast. I really should get awayI need to get away.
Anyway, I guess I will go now. I think I might have to sign up for AOL in order to have internet access for tonight which I could do because they give you 3 months freetoss it on the credit card and then cancel it tomorrow
OOOHHHH, the news is quite interesting right now watching all the people flood out of new york. I guess most of the people from down home are still wihtout power but reports say it should be on soon. I just hope my flight doesn';t get all fucked up as a result.
Well I am back at the NIH. My kidneys are fucked yet again but what can I say, they basically always are. Looks as though I will be starting some new treatment next week which is somewhat experimental. Its some cancer treatment that I will receive by IV once a week for a month. It breaks down the b proteins in my system that are seen in the ANCA. I test positive for ANCA so I am apparently a prime candidate for this treatment. The IV doesnt bother meI can handle large needles being lodged inches into my veinsits the having to stay for 2-3 days each time. As I have said many times before, all I want is a break. I wish I could be normal. I wish I could wake up even for just one morning and spend the day as a normal, healthy human. I wish my problems would go away. They are all too complex. I understand dealing with problems and what life throws at you is all of part of growing up but Ive been dealing with being an adult since I was 12 years oldwhen is my time to experience life.
Tonight I will stay at the park inn, its a local hotel on the Rockville pike. I dont mind it there, last time I had a suite because it was the only rooms they had left, I doubt I will be as lucky this time. Ill probably wander over to White Flint mall at night and hit up dave and busters.
One upside is that if I do end up growing through this new treatment I will almost earn another free flight through southwest, which would mean Id have 2 round-trip tickets for anywhere in the US and either 3 flights to new york or 2 to the west coast. I really should get awayI need to get away.
Anyway, I guess I will go now. I think I might have to sign up for AOL in order to have internet access for tonight which I could do because they give you 3 months freetoss it on the credit card and then cancel it tomorrow
OOOHHHH, the news is quite interesting right now watching all the people flood out of new york. I guess most of the people from down home are still wihtout power but reports say it should be on soon. I just hope my flight doesn';t get all fucked up as a result.
everyone deserves some time to experience life. some would say you have done so, but i would say you deserve to do so.
good luck.