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azurarose

Toronto, Canada

Hopeful Since 2014

Followers 2018 Following 10

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Blog Homework: My first tattoo.

Jan 18, 2015
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This is an old @bloghomework, but I wanted to share a bit about my tattoo and what it means.

My first tattoo (so far) is a Victorian serving spoon on my right thigh. It is based on a real spoon I found online. Why a spoon though? Well, as most of my followers already know, I am disabled. I have a genetic disorder called Ehlers-Danlos Syndrome. My tattoo actually has "EDS" monogrammed on the handle of the spoon. The meaning behind the spoon itself is based on a blog post shared widely among the disabled community called Spoon Theory.

Spoon Theory can be read in full online here, but I'll summarize it. Spoon Theory is a way to explain day to day life with a chronic illness. Whether chronic pain or fatigue, or even some mental issues, life is a bit different. Every day, we start with a certain number of 'spoons'. Abled people usually have so many that they don't have to keep track, but when you're disabled you can often start the day with a very low number of them. Every thing you do takes a spoon, and some take more than others. Standing on the subway, bending to tie shoelaces, walking up the stairs, trying to do groceries or cook, all these things are more difficult when you're disabled. I have to keep track of my 'spoons' or energy throughout the day, because when I run out, that's it. I can borrow against tomorrow, but that means tomorrow will be that much more difficult, and I never know exactly how many spoons I'll have each day. Sometimes I have to say no to things I really want to do so that I can do other things I have to do. It does mean though that I fully appreciate everything I do, and if I spend time with someone it means I've actually decided that was the best use of my time and energy.

Spoon Theory has helped me to better manage my disability, and to explain why I don't go out as much as everyone else. It also helps everyone around me understand that much better. I've always had to manage my energy, but having a concrete theory like this helps me visualize it and remember better.

So, the spoon tattoo, then, is a reminder to appreciate the time I have with people. It is a symbol of my growing as a disabled woman, and the love I have for my body, not despite but because of my differences. It's a celebration of being unique, self-acceptance, and self-care. It's also a physical representation of the old adage, out of pain comes beauty. Tattoos and EDS are both painful to experience, but I believe the pain of both has enriched my life and made my look at things a bit differently than I would have if I was not disabled.

VIEW 4 of 4 COMMENTS
imporeo:
Well I don't think many people can top that story. Just a shame this isn't school and you're not getting an A+
Jan 18, 2015
phaseish:
great shot <3
Jan 19, 2015

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