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amanda

United Kingdom

SG Since 2004

Followers 497 Following 387

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Thursday Oct 21, 2004

Oct 20, 2004
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Well i'm still off work with my hand surreal the glue still hasn't come out and now the doctor thinks I have minor nerve damage frown that means I get another two weeks off biggrin .

I had to go to the hospital the other day to see a neurologist to see if I have epilepsy. I have "attacks"which start of as feeling a bit odd then I'll start to get really hot and my hands and arms will start to shake and if its a bad one my legs will give way and I'll end up on the floor shaking and my eyesight goes wierd all I can see is red and blue fuzziness(almost like a TV thats not tuned in) I'm still fully aware of everything around me while its happening I just don't seem to have control over my body. This lasts a few minutes then I get really cold and pale and feel crap for a few hours afterwards. Luckily I don't get bad ones very often. Well I don't have epilepsy biggrin but apparently I have Vasser Vagel syndrome surreal and there is no cure for it so when I feel an attack coming on I have to sit on the floor and put my head between my legs surreal can you imagine me doing that in the middle of Manchester whatever . I will also have to avoid warm congested places as if thats going to happen mad that would mean no more gigs, pubs or clubs even shopping. The most annoying thing is that when I have one of these attacks people just presume I'm on drugs, I nearly got thrown out of a gig once because secrurity thought I'd taken something surreal they were asking my b/f what I'd taken whilst trying to pull me over the barrier mad


Its been raining for the last week and its really cold rain even the puppy doesn't want to go out in it. Speaking of the puppy he stole my bed about 8.30 am ( he manages to shove me into a gap between the bed and the wall) and he is still asleep cuddled up in my duvet 3 hours later and i'm sitting here cold and tired frown and he is snoring his head off but he will be tired because he was awake all night fidgeting and licking the duvet and carpets mad and last time I looked he was using my Charlie bear as a pillow frown

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Updated to add pictures of my new baby Diego love





kiss kiss kiss
VIEW 25 of 38 COMMENTS
paleenchantress:
Aww sweetie, im so sorry to hear you havnt been feeling well. i hope everything gets better and i'll be thinking of you. kiss
Oct 29, 2004
battles:
Hullo. Obviously, I'm not a Doctor but this "Vasser Vagel syndrome" sounds almost exactly like what I get. My doctor ruled out loads of stuff (like migraine) and very kindly ruled out epilepsy so I could keep my driving licence. Months later I read an article about simple food allergies acting as triggers and now I can kind of control it through diet.
It's boring, but it might help you do keep a food diary and look back 72 hours before each attack and try and spot a pattern.
Oct 29, 2004

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