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1:21am, hello old friend. We've been seeming to meet quite often in the last year. And, while I should be following the advice of the two people who care enough to give it and complete some of my unfinished writing; I find myself bitching instead. And then I just catch myself in moments like these, tears and snot streaming down my face and I comically,...
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pax_:
frown
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dreading the lonliness once my son has gone home to his mother's

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pax_:
I'm sorry. frown
nocturnalink:
Worse is that it's a combination of his leaving and missing her...... frown
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can you believe Enter Sandman was 17 fucking years ago?!

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Today was a bitter sweet day. I had to cancel taking part in today's, this year's Walk MS. It hurt to have to miss this event to raise awareness, I'd been "training" for the walk by using my own two legs and cane to get around everywhere for the last 5 months. I said NAY to the scooter at the supermarkets and WalMart, it got...
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pax_:
I'm sorry about the Walk, but at least the day did turn out well. smile
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Saturday nights all right.

If you can keep your eyes open for longer then 10 minutes or so at a time and your not being asked if you're OK every time they are open. I have Multiple Sclerosis, of course I'm OK. It's only a chronic, incurable, debilitating, auto-immune disease of the Central Nervous System. Everything about knowing that your own body is trying to...
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Today started out INSANE, Had to drop off the hospital prescription at the pharmacy, called the hospital, my neurologist, my insurance, my 8th grade teacher, and the priest who baptized me, trying to get approval. It seems 1,000mg of prednisone over 2 days and 500mg the next 4 is an excessive amountnormally. Long story short at the end of the day I shelled out $40...
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pax_:
Goodness! I'm sorry it went like that! I have the same problem with prescription pain meds. And that's after I fight with the drs to give them to me that strong. You are right about children though. smile I love getting hugs and kisses from Connor.
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I hate hospitals but, I practically live there?

I spent the better part of yesterday, 3pm to 12am, in an uncomfortable bed in the Emergency Department of UMDNJ. I felt an exacerbation coming on and went to my doctor, who agreed with me, that the symptoms that brought me to his office might very well be a flare up about to happen, or beginning to...
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Wow today was a shitty day. Guess I have to pay for all my good days with MS sometime right? The entire left side of my body feel wonky and it's a bitch trying to get up and walk. And the MS Walk is SUNDAY!eeek I will make it, I will make it, I will make it. I can't walk to the bathroom today but,...
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My Copaxone injection stung a little bit today. It was the first time in over 280 DAILY injections that I actually felt anything. Such is the struggle to live well with Multiple Sclerosis. It's nothing I couldn't handle. Visit to one of my Dr.s today confirmed that all was still working well. YAY biggrin

Kind of nervous about the MS Walk on Sunday. I'm not sure...
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Today was a good day. Well a good day other than the forced realization that I had been such an asshole during the last 7 years, that I had quite a few people, including myself, very disappointed in me. And letting me know about it. Let me tell you, once life has dealt you a disappointing handyou really dont want to be part of dealing...
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pax_:
I've done the MS walk before. The woman who encouraged me to play the flute has it. (And still manages to be an amazing flautist.) And there's always time to turn things around. Don't get too discouraged.
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Been talking to a couple of exes and a wanna be. I realize how badly I have hurt people my whole life whether through my actions or IN-actions. And listening to the audible version of 13 Reasons Why isn't helping any of the feelings I'm having.