As in the next three months I will have my wheel chair, it will be nice to take a break from falling and bruising my knees this time. I will also be able to go out in public to attend the local renaissances fair or plan a trip to Disney land with my girlfriends and their kids. Along with saving my energy. All though I...
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softnsweet:
I have heard other horror stories about having to jump through hoops to get them too. Hope it comes soon.
mckenzie:
@Softnsweet I'm pass the hoops I just have to wait three months and wait hopefully I like the feel of the chair and it doesn't get me trouble

October started great so far, I finally got treated to eat Mexican food at my new favorite restaurant and spent the last September night sitting out in the cold sitting on the grass, watching Alfred Hitchcock "Vertigo." For my first time, where the movie was filmed in beautiful San Juan Bautista California, with my friend Aldon who finally admitted he is single again.

Waking up...
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Spent the day with grandma, she treated me to my second massage. I really appreciate it, all though, she thinks I need to write a book of my story on my genetic disease. This barely happened starting in 2012. I' am still learning and dealing with my life change. I'm spending plenty of waiting around for doctors and other people in the health field...
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softnsweet:
I appreciate your updates and of course no one can understand or feel what you do, except that is must really suck.
mckenzie:
I was more angry when I found out, I have my moments with my parents but I rather not deal with it, I cant control anything anymore so I don't feel the anger as much as I can. But once I met with the wheel chair people I felt like they were more willing and helpful with how I felt with what I'm dealing with.

My Weekend, was filled with lots of: yummy food, Sex, snuggles and kisses, screaming for the Patriots, hand holding so I wouldn't fall. But I fell losing my balance while I was cooking the super bowl tacos for my boy toy. He came to my rescue and picked me up with his arms. I almost teared up when he helped me, the help of...
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chazstrummer:
Hahaha
softnsweet:
that was quite a game, glad you have some support to help you through the illness.
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2016 was horrible, on behalf of my health, my betta died along with my shiatsu , trying to date again. But losing so many great musicians Icons. I'm really bummed over Bowie and Prince. I still want to get my Bowie lightning bolt tattoo. As soon as I get my disability money I want that, and I will head back to PDX to see @casper...
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mckenzie:
@softnsweet thanks sweetie its a rare disease, so I have the rest of my life to deal with it. @chazstrummer I hope I'm going for my bday, its not till mid January if the boy toy buys the tickets.
lord_renob:
I hope 2017 has been an improvement. @};-

HSP

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What is HSP?

What is Hereditary Spastic Paraplegia?

Hereditary Spastic Paraplegia (HSP) is a broad group of inherited, degenerative disorders characterised by impaired walking due to spasticity and weakness of the legs. The primary features of HSP are spasticity and weakness with the proportions varying from individual to individual. Symptoms worsen over time. Diagnosis is primarily by clinical neurological examination and testing as there are...
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