Update: Tumor needs excision. Dr admitted that it is actually growing "impressively fast", and that they wanted to do a vestibular balance test and wait till the cardiologist clears my heart to make sure I dont need a pacemaker or something. This will take a couple of months and I would assume by the new year they will be ready to make a move. He also was concerned about how "seriously" I was taking this, but not to worry I have a few messages in to some counselors that specialize in these kids of things. I know its serious, I get that I could die. I do, but I can admit it still really hasn't sunk in. He wants me to be open minded about radiation but can understand my desire to do surgical removal and hope it doesn't return. If my hearing is lost during surgery I can get a cochlear implant potentially so make up for the loss, so that's a positive! Either way I will lose my hearing in that side whether it is now, or later, it will be gone. I'm not really a fan of the idea of radiation and the fact it could take several visits for a tumor growing at this rate. The risk is that it can cause other brain tumors, and all it does it halt the growth not kill it off or anything. it can then start to regrow at a later date and I will be required to have multiple MRI's throughout my life to monitor it. I will have to be monitored either way and there is the possibility they will have to leave some tumor behind in the vestibule in order to leave my facial, and balance functions in tact. they dont really truly know the outcome till they actually get in there and see it. This is a pretty gnarly surgery too, and caries many risks. they say, once you lose something in your body, you dont really ever get it back. I would like to preserve my balance, and my hearing and my feeling and function in my face as much as possible, that is for sure. This is all I know at this time and I really appreciate all of your support, good vibes, and so forth. I will likely live through this, I am not worried about that. They caught it in time before it could get too huge and cut off CSF flow or blood and cause death. This is why being an advocate for your health is very important. They found this spec a year and a half ago and the doctors were so aloof about it I never put much more thought in to it till a few months ago and I started noticing changes and Then thought to ask about it, and made these appointments at Mayo because no one seemed to be really concerned about a lot of things I was having go wrong. Please, if you sense something isn't right, see a Dr. If that Dr wont listen, then see another. It is better to be nothing, than to find out its too late. Anyhow, these are all the details I can really remember I hope I covered it all.
On a lighter note,w hat should I name my tumor, so when it gets evicted I know who the serve the notice to ;)