Best wishes, internet hugs and all of the above, Jewelz.
What a difficult thing to deal with. For all of you.
We'll be keeping you in our thoughts and prayers.
yr son is lucky to have such a wonderful support system. nothing is more important than family, eh?
you guys are in my thoughts.
and btw, totally inappropriate...but he's really cute.
Jewelz,
I am so sorry to hear about your son Ryan. No person should have to deal with such an illness at that young age. You have a very strong, loving family and lots of friends to help you through this. Just hold on to one another and make sure you take care of yourselves so you can be there for Ryan. Tell Ryan he's got an army of Geezers pulling for him.
**big giant mega hugzz** to you and your son
that's so sad.....
you are both in my thoughts and prayers.....
medicine now a days is pretty speccy.... working in medical research myself... i have heard and seen some procedures that make me marvel.....
and in the US.... you are leaps and bounds ahead of us down under
take care lovely
Fingers AND toes crossed. And thank you for responding. It is always great to hear from you but in times like these if you can't I would sure understand.
Considering the fear and uncertainty you've been going through, where things stand now sounds like an improvement. I'm continuing to think good thoughts. It's easy for me to say, but, under the circumstances, I would be somewhat encouraged by the latest developments.
I needed to digest what I looked at after seeing your blog last nite.
It has a name and treatment centers, right there is a huge Plus.
As usual SocietysPliers is right there with some good
Medical advice.
Yes we're all able to give you and yours Emo support and a place to
rant and rage. Is there a way to 'pass-the-hat' because this sounds expensive.
I'm on a Flex-care system, which is 'use it or lose it', if need be let me
know which pharmacy to contact and I'll see if I can stand ya some
$$ for his Meds.
And no matter how scary Chiari is, this is worse:
And something from Dylan:
"The only thing I knew how to do, was to keep on keeping on".
All of my best to you and yours.
I posted these in my journal this morning, but I wanted to share a couple of images with you so you would see what I see when I say I am praying for Ryan and all of you. May you all find love and comfort and strength in the arms of the Mother.
I am so glad the m-i-l came through and he's seeing the neuro today!!! My thoughts remain ever with you all.
Honey I will ETERNALLY be keeping you all in my prayers!
and I am fine. VERY weak and I get tired easily but thats from all the throwing up I did!
Eees okay tho..I will take a nap between shifts and should be good for a few morehours of work hell!
Hey Love. Wow! What a lot to process. I know that things have got to be overwhelming right now. It is never an easy thing to deal with when our kids are sick, and it always is harder to deal with the more severe it is and the farther they are away from us. I have an idea of what you are going through and I am sending you all the love and support that I can. The good news is that they found it, it can be helped, and there is hope. Those things can be over half the battle, especially the finding it part (I should know...it took 10+ YEARS for them to diagnose my son...). The "fixing" it part isn't going to be easy, but Ryan sounds like a fighter and you and Flashmo are awesome support.
Don't beat yourself about losing it...we are allowed to fall apart occasionally. Knowing that we can fall apart if we need to is what allows us to be strong and hold together the rest of the time. It's how I can be strong and firm through counseling and support my Son through the rough spots...then I bawl like a baby for a time afterward...but we get through. I have faith in all of you
As for my Hubby... I wish he was traveling for work this time. No such luck though.... His Dad was in a motorcycle accident earlier this past summer. He managed to break his neck in two places, all his ribs down the left side, and bruise the hell out of everything else. In a way it was a very good thing that he did have the accident though. When they did an MRI on his head and neck they discovered that he had a brain tumor that covered well over half of the right side of his brain. He is scheduled to go in for brain surgery on Friday. My Hubby Phqurs flew down to TX to be with his Mom as support. He needs to be there, I just wish I could be too...
Hang in there Love..... (((((((((HUG)))))))))))
OF COURSE I'm praying for your kid and for you and Flashmo and your daughter. After all the praying you've done for my dad how could I not. Hell, even if you hadn't prayed for dad I still would. I'm just like that you know.
my mom has arnold chiari malformation. she had all of the same symptoms that your son has. they did 1 surgery on her, removing a piece of her occipital bone, in 1982. she is going to be 50 next month and is in fine health, has raised us up just fine and has a job where she is all important. i don't know if that helps at all, but it is treatable, even if it's rare. i was 2 years old at the time my mom was diagnosed, and my mom was 23.
i am praying for you and your family. i hope that all goes well, and that the docs heal him quickly.
What a difficult thing to deal with. For all of you.
We'll be keeping you in our thoughts and prayers.