Sharks for the win

5

Last night's game against the knights was awesome !! I predict Sharks win the cup in game six by nervously bitting my nails last night!! Hopefully Joe Thronton will make a apperance in the next game! I really hate the intro to the golden knights games. Vegas is so fake.

I'm thankful that my cousin is staying at my house, it's great to...
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Spring 2018

7

Im thankful for the nice sunny days in California and my growing garden. The only excuse I can get outside to water and care for my sun flowers and now I'm growing Spanish lavender. I'm waiting for June to prune to make lavender oil. I would love to make soap.

I'm slowly using my wheel chair more. I haven't used the...
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VIEW 3 of 3 COMMENTS
tina_marie:
Positive vibes babe ♡ be proud of the inner strength you've built.
gregmikk:
From what I have been reading you are awesome! So much strength! I am a Hockey fan also, I even played up until a few yrs ago. I have season tickets to the Wild. Keep living your life girl! You are beautiful!

All I want for Valentines Day

11

xheartswornx:
Awesome!

Birthday 32 blast

26

Amazing birthday, went bowling and had a blast, just that the birthday shot killed my blue moons buzz and wonder woman birthday cake. I made sure to puke on the way home. My friends surprised me with diner and a cake and presents before girls night attending an art class, making a bath bomb. I won at making the most. My friends all bought me...
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VIEW 13 of 13 COMMENTS
mckenzie:
@xheartswornx he is nuts and I love it, me and Mom laughed a few times when tour guide explained paintings it was a really fun birthday
xheartswornx:
Awesome to hear. 😊

bath bomb dirty 32 bday

5

softnsweet:
yeah you are
mckenzie:
@softnsweet thank you

Dirty thirtys...

9

Planning my 32nd birthday at the bowling alley... January 21st

In 2018 I plan to read more, and hopefully score a real boyfriend

xo Mckenzie

2018 better get easier

6

I'm so annoyed at my life. I'm stuck in my wheel chair for good, once my legs give out, while everyone keeps moving on with their life, one friend just announced her second child, my other friend is moving into her first home with her boyfriend and daughter. while I cant even meet a good guy to go on a date. I finally...
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VIEW 5 of 5 COMMENTS
mckenzie:
@sugadaddi I'm not purposely trying to but I'm just annoyed at everyone else life around me.
tina_marie:
I've been there. I have lupus. At times its crippling. I feel guilt for anyone who had to take care of me, I end any relationship I'm in when my flare ups get bad because I can't be there for them. It's difficult. You have a beautiful soul.... something most with legs don't have. The grass will always be greener on the other side. .. till you tend to the garden within. I can't imagine what you're going through.  I was in a wheel chair a few times due to illness. . . But this will open a strength in you that you never knew existed. Keep your chin up darling. It's a bad moment in time, not a bad life. XOXO

October fun

8

October started great so far, I finally got treated to eat Mexican food at my new favorite restaurant and spent the last September night sitting out in the cold sitting on the grass, watching Alfred Hitchcock "Vertigo." For my first time, where the movie was filmed in beautiful San Juan Bautista California, with my friend Aldon who finally admitted he is single again.

Waking up...
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tickle spot

6

Spent the day with grandma, she treated me to my second massage. I really appreciate it, all though, she thinks I need to write a book of my story on my genetic disease. This barely happened starting in 2012. I' am still learning and dealing with my life change. I'm spending plenty of waiting around for doctors and other people in the health field...
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chazstrummer:
I'm sure it would be an interesting book, but I can understand why you wouldn't want to do it.

HSP

3

What is HSP?

What is Hereditary Spastic Paraplegia?

Hereditary Spastic Paraplegia (HSP) is a broad group of inherited, degenerative disorders characterised by impaired walking due to spasticity and weakness of the legs. The primary features of HSP are spasticity and weakness with the proportions varying from individual to individual. Symptoms worsen over time. Diagnosis is primarily by clinical neurological examination and testing as there are...
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