Spent the day with grandma, she treated me to my second massage. I really appreciate it, all though, she thinks I need to write a book of my story on my genetic disease. This barely happened starting in 2012. I' am still learning and dealing with my life change. I'm spending plenty of waiting around for doctors and other people in the health field...
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softnsweet:
I appreciate your updates and of course no one can understand or feel what you do, except that is must really suck.
mckenzie:
I was more angry when I found out, I have my moments with my parents but I rather not deal with it, I cant control anything anymore so I don't feel the anger as much as I can. But once I met with the wheel chair people I felt like they were more willing and helpful with how I felt with what I'm dealing with.

The Pop up Art show was slow, thanks to the stupid typical Biker Rally in Hollister. But luckily, I scored some unique tea tin cans I ended up planting the rest of the succulents I bought while I was in Santa Barbra visiting family. Then my Aunt that works at the grocery store saved me some patron tin cans, I bought a large cactus that...
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mckenzie:
@softnsweet thanks Planting is what I like to do, I just hope I can keep doing it
mckenzie:
@chazstrummer I don't have a trip set in stone yet, not sure when the next sale will be. I wish selling online was easier dealing with shipping and the risk of my succulents drying out.

My Weekend, was filled with lots of: yummy food, Sex, snuggles and kisses, screaming for the Patriots, hand holding so I wouldn't fall. But I fell losing my balance while I was cooking the super bowl tacos for my boy toy. He came to my rescue and picked me up with his arms. I almost teared up when he helped me, the help of...
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chazstrummer:
Hahaha
softnsweet:
that was quite a game, glad you have some support to help you through the illness.
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2016 was horrible, on behalf of my health, my betta died along with my shiatsu , trying to date again. But losing so many great musicians Icons. I'm really bummed over Bowie and Prince. I still want to get my Bowie lightning bolt tattoo. As soon as I get my disability money I want that, and I will head back to PDX to see @casper...
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mckenzie:
@softnsweet thanks sweetie its a rare disease, so I have the rest of my life to deal with it. @chazstrummer I hope I'm going for my bday, its not till mid January if the boy toy buys the tickets.
lord_renob:
I hope 2017 has been an improvement. @};-

HSP

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What is HSP?

What is Hereditary Spastic Paraplegia?

Hereditary Spastic Paraplegia (HSP) is a broad group of inherited, degenerative disorders characterised by impaired walking due to spasticity and weakness of the legs. The primary features of HSP are spasticity and weakness with the proportions varying from individual to individual. Symptoms worsen over time. Diagnosis is primarily by clinical neurological examination and testing as there are...
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When you get an invisible illness like fibromyalgia, or lupus, or MS, or chronic fatigue, your whole world alters. How you see yourself changes. But how the world sees you does not. Your illness is invisible to others, to doctors and to the government. The perils of not being seen can be life-threatening.

Nearly half of U.S. citizens live with some sort of chronic...
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ferkixlll:
Well done. My sister suffers fibromyalgia. Me, that old demon Gluten. Keep in mind that Big Pharma would rather find a pill that you'd have to take FOREVER, then to find a cure for anything.
mckenzie:
I don't take pills only vitamins
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Today my parents had to put down my 17 year old dog Kirby, he had a great life just bums me out he wont be around so I can pick him up to snuggle and love on. Ill miss you buddy.

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legman:
I'm sorry for your loss.
mckenzie:
its okay it was his time, we still wish he was around...
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Who would of known that my Beta can jump. I noticed I needed to change his water. so I scoop him out in a red cup, and left him next to my window. While I walked back and forth to the kitchen to fill his tank with fresh water. I finally poured in the last of his water and grabbed the red cup and I...
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legman:
who'd have thought a fish could cause so much trouble!
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Well today will be the last of twenties, Tomorrow I will start a lot of new things in my life and how I look at the world. My twenties were filled with my independence, traveling, exploring, meeting new people, and dating stupid assholes. Hence why I'm single and not married with no babies. It rains on my birthday every time I celebrate. So I...
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chazstrummer:
Happy birthday!
chef:
Here's to no babies !! Happy birthday 
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The paper work for my blood test on Monday is intimidating to read and fill out, I schedule the appointment for them to come to my house after my yoga class since that's the only day I have free to do my test to learn about what my Hereditary disease is and how its going to affect me for the rest of my life...
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chazstrummer:
Hope you get a good result.
mckenzie:
thanks